Someone to talk to

I don't have anyone in my real life that has crohns, so I don't have anyone to joke with face to face.  There are times that I wish I had a buddy with the disease, but I wouldn't really wish that on anyone.  I just want a person to bounce stuff off of.

I'm part of tons of forums, and social sites like twitter, but with a person I would ask questions like such as:

Do you ever have to run to the bathroom?  I do, every time I get near the restroom at home, there is something in my mind that says "Time to go, NOW!"

What kind of pain are you feeling?

Do you suffer from crazy hiccups like I do?  I don't know if they are related to crohns, but I get them like crazy now.

Let's compare scars.  Although, mine really aren't in a place meant for showing.

You know, I would have a tons of question like that.  I need a bud.

Toilet Seat Preference

I was just wondering if you all have a favorite toilet seat. The one that's in my apartment sucks because it's too small, but I haven't changed it yet. When I do get a new one, I want to make sure it's perfect. 


I don't really like the padded type, because after awhile they crack and hurt. I don't know if there are different types of padded seats or just the cheap ones people always seem to have. The most comfortable seat I think I have found is usually on public toilets. They are usually elongated, with the inside carved downward, and the front portion cut out.

I have been looking at Home Depot's site and there are a ton of options.  If you all know any good ones that you love let me know. Thanks.

The Pain is Coming. The Bathroom is Imminent!

Tonight, I had great dinner.  Nothing too fatty.  Pork chop, potatoes, and vegetables. After eating, I sat on the couch to watch my favorite night of tv.  You know NBC's Thursday lineup.  While sitting on the couch there is one thing that I obsess about.  I know that within a few hours, I will be sitting in the bathroom, bent over in pain, trying to remove a day of waste.

It happens to me everyday.  I eat, and then I can't my mind off the pain that's coming.  It really sucks.  When I'm at work, and I'm not doing anything else, I think about pain.  Maybe that's why I feel so bad all the time. I'm always thinking about pain.  I just want my surgery wound to heal, and the pain inside to stop.  I don't know.  I wonder if others with crohn's disease think about the same things.  

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H1N1 Fears

What's a guy who's body is immuno-suppressed supposed to do?  All around me people are getting swine flu.  Every time I watch the news more kids minutes from my home are getting sick.  Also, I learned today at work that a coworkers son and fiance both have swine flu, and she may be coming back to work tomorrow.  Should she be out of work too?

I haven't talked to my doctor about it, but I believe he wouldn't want me to get the vaccine.  I read that it is generally recommended that people with chronic conditions get the seasonal flu shot, but I haven't seen anything about the H1N1 vaccine.  Will any of you all be getting the Swine flu Vaccine.

IBD and Government

Right now the is a bill floating aroung the House and Senate that could beneficial for us Crohnies. H.R. 2275 or S.981 would let Congress know that the National Institute of Diabetes and Digestive and Kidney Disease at should expand research on IBD. Also, the bill would authorize for five years an IBD Epidemiology Program at CDC, and create an awareness program at the agency.

Please contact your legislator and urge them to co-sponsor the IBD Research and Awareness Act.

Check out the CCFA's here to get assistance with sending letters.